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RiRi

After Diagnosis

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RiRi

What did you do after getting officially diagnosed (e.g. did you join support groups, go out more, etc.)? How did your life change since you got diagnosed?

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Nesf

After getting diagnosed, I quit my job because I couldn't cope anymore with the anxiety it was causing (edit) and went to live with my mum for a while because I thought I could be best supported in the UK. I looked around to see what help was available in the area I was living. There wasn't much support for adults with mild ASD in my area, but I started treatment for depression and was put on a waiting list for CBT therapy. There weren't any support groups in the area, but I joined a couple of ASD forums including this one and that helped me through that period of my life. I didn't go out more, in fact, I socialise a lot less that I used to, I don't feel the need or the desire.

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Angry Primeape

I havent gone out has much only to day centre most the time

Takes a lot of me to go out lately

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RiRi

I go out less after the diagnosis, as well. My life hasn't changed very much, only that I now have something to back up my diagnosis. It hasn't been too long since I got diagnosed so it might change later.

Although, the diagnosis as such may or may not be the cause of the change.

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Angry Primeape

How come it could change later?

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RiRi

I may qualify for benefits due to the official diagnosis. Also, it can be helpful if I need accomodations in the future. lol I hope that's how accomodation is spelled.

Nope. That's wrong it's with two m's not one. :lol:

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HalfFull

I almost immediately went to see the Disability Adviser at the Job Centre as she couldn't directly help me before I was formally able to prove it. This led gradually although not immediately to being put on an employment scheme (Workstep), and from this I got 7 months of work albeit. Though that went the shape of a pear, after a further gap, I got work with my current employer where Ive been 10 years even though thats now going not too great but still.

 

I did join a support group. Although I was one of just 2 'known' Aspies there, the rest being parents, one of them who I actually bumped into recently at a national conference gave me some website addresses and I went on to become a regular in the online AS community where I've been now for 13 years.

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Angry Primeape

I may qualify for benefits due to the official diagnosis. Also, it can be helpful if I need accomodations in the future. lol I hope that's how accomodation is spelled. Nope. That's wrong it's with two m's not one. :lol:

oh makes sense thanks :)

I asked cause i misunderstood what you said i thought when you said "it could all change" i thought your diagnosis will change :)

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No Longer Here

No support groups around here apart from those for parents of Autistic kids. 

 

I sought answers here actually and some people really came through for me. I won't ever forget that.

 

As I've said elsewhere I went through CBT and then completely re-focussed my life to use the gift side of Asperger's to make me happy. (My Artistic and musical abilities and skill of making things by hand)

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RiRi

oh makes sense thanks :)

I asked cause i misunderstood what you said i thought when you said "it could all change" i thought your diagnosis will change :)

I don't think I said it could all change, I said in the future it might change. I was thinking in future sense. :lol: I didn't even know exactly how, just thought it could change. :) Sorry for sounding confusing.

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Dingo

What did you do after getting officially diagnosed (e.g. did you join support groups, go out more, etc.)? How did your life change since you got diagnosed?

I didn't physically do anything different.  I didn't go out any more or less than I used to.  I think my doctor knew of some support groups I could join, but I wasn't interested.  I had a little trouble adjusting to the diagnosis.  I was happy to finally know and have answers, but seeing my diagnosis written down on an official document made it seem so final and made me feel trapped for a while.  It has made my family a lot more understanding and supportive of me, which is good  :)

 

Though that went the shape of a pear

That is a really strange phrase I had never heard before.  I had to google it and in case anyone else is confused by it, when something goes the shape of a pear, it means it went horribly wrong.

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RiRi

I go out less after the diagnosis, as well. My life hasn't changed very much, only that I now have something to back up my diagnosis. It hasn't been too long since I got diagnosed so it might change later.

Although, the diagnosis as such may or may not be the cause of the change.

I get what might have been confusing now. I have trouble with being clear when I write, but I hope that I will improve. When I said "it" might change, I was talking about my life. It might change, not my diagnosis.  :)

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Whoknows

Nothing, 'cause only my parents knew. :lol:  LoL!

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RiRi

Nothing, 'cause only my parents knew. :lol:  LoL!

How about when you found out? Did you do anything differently?

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Whoknows

How about when you found out? Did you do anything differently?

Nothing happened, either. No, I kept watching TV.

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the strangest man

IIRC I went to Waitrose for a cup of coffee with my wife, stared very memorably into her eyes before heading home. I did join in a support group in Salisbury, which is still going strong and where I made a good number of 'friends'. Also joined in with the Wiltshire Council autism forum run by the NAS, which meant I met a number of others across all parts of the spectrum.

 

But above all over the next few months we often sat down at home to realise the funnier aspects of AS, especially when we recalled the odd social mishap in the past.

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