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Mimo

Adult Awaiting Diagnosis

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Mimo

I am both very excited and very nervous. I have finally found a doctor that diagnoses adults with asd. It took me several weeks and many phone calls. I'm not sure what to expect. If they agree that I have asperger's it will explain a lot of things and be a huge relief. But if they say I don't have it, I might have a meltdown right then and there. I need answers.

There are moments and days when I can check 85% of the boxes on any asperger's quiz. Then there are days that I feel normal or at least normal-ish. I don't think I have obsessive interests but then I do enjoy researching various topics to death or near death. My current topics is asperger's. I'm not aware of any stimming behaviors but maybe I just haven't identified them? But what I'm really wondering is did I have any of these behaviors as a child, or can I have asperger's and not have obsessive interests and stimming behaviors? Can I really have had asperger's for over 30 years without anyone noticing?

I'm so tired of being the oddball, the misfit, the outsider. People constantly misunderstand me. I just want to be loved and accepted for who I am asperger's or not.

I am new to the site and haven't had time to read a lot of the previous posts, so I apologize if I'm being redundant. I would love to hear from others who have been diagnosed in adulthood. How the process was, how the diagnosed affected them and any encouragement or advice.

Mimo

 

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Nesf

In my experience of being on forums and seeing people like yourself, who suspect they have ASD, then research it and join forums, etc, usually they do indeed have it and go on to get their diagnosis. It's in the nature of ASD to worry a lot, to research a lot and turn things like researching Asperger's into special interests. It's also normal to have days when you feel that you are normal, and other days when you are more affected by ASD traits. Sometimes I have normal days, with normal social interaction, (or I deal with them in a satisfactory manner), normal sensory experiences, I feel more confident and less anxious, nothing bad happens. As for childhood traits, it's best to speak to a close family member about this, as they will often see things that you didn't notice yourself, or remember you how you were as a small child and if you were different from other children.

I was diagnosed privately, not on the NHS. I visited my GP with a list of reasons why I thought I might have Asperger's, and how those symptoms affect my life. At the time, I had hit rock bottom, was unable to work and was going through a depressive episode, a burnout. My mum was with me and confirmed that I had these traits as a child. The GP referred me to a neuropsychiatrist who conducts Asperger's assessments. About 6 weeks later I had my assessment. It was an interview. My mum was at the interview, and also answered questions about my childhood development. The psychiatrist concluded at the end of the interview that I did indeed have Asperger's, and I was told of my diagnosis straight away. He did not ask me to do any further testing, but this is unusual, usually they want to conduct various tests. I don't know why mine different, I can only assume that he was sure enough of the diagnosis not to want to test me further. After about 2 weeks I received a written report in the post.

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Mimo

Thank you for your encouragement! As of right now I am keeping my possible Asperger's between my husband and myself (and all of you). I'm very worried about whether my family will accept such a diagnosis. I hope I will be able to receive an accurate diagnosis without their input for right now. Figuring out how to tell my family will probably become my next special interest!! Lol!

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mysti

It's nearly 2am my time as I write this so it's not going to be a particularly eloquent reply but I got distracted when I was planning to reply earlier & just remembered now.

I wanted to mention stimming first. My stimming isn't big movements & isn't the typical things you tend to think of regarding autistic stimming, such as flapping & rocking. We all stim differently & in fact it took me a while to realise that my stims were just that. I do things like play with my hair, fiddle with any jewellery, play with my hands, pick my nails or the skin on my fingers, pick my lips... So it may be that you stim, just in different ways.

And I'm pretty sure that researching topics in such depth would count as obsessive interests.

My diagnosis consisted of filling out a few basic questionnaires beforehand (& I think my parents filled one out too about my childhood). Then I had one session with a specialist (which my mum attended too) & was given a diagnosis at the end of that. So I didn't have any extra testing either.

I hope that all made sense... I think I need sleep.

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Lunami

Trust your gut. I knew something was up with me and at times would doubt myself or wonder if maybe I was just paranoid. I'm 28 and went my whole life feeling different, but not enough that people noticed or said anything. I have some obvious signs too, but people's definition of autism are far more extreme than what can actually be the case. I was diagnosed a month ago and I wasn't even surprised. I just knew.

As for stimming, I rock, but I am able to control it when I am in public or around people I don't feel comfortable with. So in my case and I'm sure many others, most people would never know I stim. But stimming comes in all sorts of ways. I've heard even listening to music on repeat is considered stimming.

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Mimo

Thank you guys so much for your encouragement. You have put my mind more at ease. I'm so thankful to have been able to do the research and become more knowledgeable about Asperger's. It explains so many things. When I look back on my childhood, there are many happy moments but many of my most vivid memories are negative. I remember my childhood meltdowns, seeing my parents frustrated and at their wits ends not knowing to do to with me, etc.

I had to move my diagnosis appointment back a week due to work meeting I did not know about (yes this was extremely upsetting). Knowing for sure that it is Asperger's will help me to move on, to learn new techniques, and most importantly maybe I will finally be able to love and accept myself.

I'm so glad I found you all! Thank you again for your encouragement!

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Skylark

How are you getting on, Mimo? Still waiting?

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Mimo

Thank you for asking. Yes, I did receive a diagnosis of Aspergers (I started a separate post). So far I've shared it with my husband, 2 close friends and my parents.  I haven't figured out how or when to tell my inlaws yet.  I'm just trying to soak up as much info as I can right now and figure out what works best for me.  I can not afford counseling or anything right now. 

I had shoulder surgery last week so I've been watching threads but haven't been contributing much. My preop nurse was awesome! I told her of my diagnosis and my texture sensitivity and she ensured my comfort until surgery!

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