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Lefki

Diagnosis

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Lefki

Hey guys!

I just wamted to ask if you have used your diagnosis somewhere.. I mean, ok I got my diagnosis but where will I really use the paper? Will someone ever ask me to show him this? Those questions maysound silly and sorry for that but I am trying to figure it out....and I can't

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11 minutes ago, Lefki said:

Hey guys!

I just wamted to ask if you have used your diagnosis somewhere.. I mean, ok I got my diagnosis but where will I really use the paper? Will someone ever ask me to show him this? Those questions maysound silly and sorry for that but I am trying to figure it out....and I can't

I've never used my diagnosis anywhere as I've felt it would just make matters worse to let employers etc know I have AS. You shouldn't ever have to disclose your diagnosis if you don't want to unless it's for medical reasons, I believe. I could be wrong, but I'm pretty sure about this.

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RiRi
2 hours ago, Lefki said:

Hey guys!

I just wamted to ask if you have used your diagnosis somewhere.. I mean, ok I got my diagnosis but where will I really use the paper? Will someone ever ask me to show him this? Those questions maysound silly and sorry for that but I am trying to figure it out....and I can't

Hi @Lefki. Perhaps someone here has used the the paper and can offer better insight on this, but I thought I'd share my thoughts. :) I have never used my official diagnosis paper for anything personally, but I think if you are trying to get benefits or accommodations, that it might be useful/needed there. Though, I'm not sure about this. I've never used it for accommodations and don't know how that would work. I'm thinking that just me saying I have ASD should be enough, but perhaps sometimes documentation is required/needed. What I mean by accommodations is maybe at the work place or at university (to be allowed more time on tests, or things of that matter). Not sure about this though or if it would granted for ASD. I think perhaps in emergency situations, the documentation can be useful, but I'm not sure also. Alert cards could be used for that as well or if just both the documentation and the cards could be useful. For in case you get an anxiety/panic attack and can't express yourself. I've never done any of these personally, but I just think that's how it might work. As for disclosing it to others, it's up to you. I think the diagnosis should be confidential.

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Pinky and his brain

You can't really use it anywhere in the private sector. You can only use it to get benefits, or special treatment. It may also give you access to cheaper medication, but that depends on many other things.

I have only used my diagnosis, when dealing with the "public administration". It gives me some minor special rights, if I get unemployed. And when I used to get really expensive medication, I got a refund because of my diagnosis.

But besides that, I haven't used my diagnosis anywhere else. So in my opinion, the biggest advantage of getting a diagnosis, is that you know what is wrong, and you can start to learn how to deal with it.

Of course it's different for children who gets a diagnosis, because they then can get more support, at an early stage. And that might just give them a better life. If the support is good.

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not around here anymore
9 hours ago, Lefki said:

Hey guys!

I just wamted to ask if you have used your diagnosis somewhere.. I mean, ok I got my diagnosis but where will I really use the paper? Will someone ever ask me to show him this? Those questions maysound silly and sorry for that but I am trying to figure it out....and I can't

From my personal experience when I claimed for the benefit I am on I had to provide evidence of my diagnosis. Other than that I cannot think of any situation off the top of my head. Perhaps an employer may want to see it, but I cannot think they have any right to make you show them. I am not sure otherwise to be honest, perhaps I will come across another situation at some point and I can tell you about it then :)

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BDEGRD

I have a question, if a person who never has an intention of disclosing their aspergers,  gets diagnosed by a psychologist that they have aspergers, but the person doesnt care about actually getting a paper saying so, does it really matter? do you really need the paper?

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Lefki

Thanks to all of you for your answers. That is what I thought too... 

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Pinky and his brain
19 hours ago, BDEGRD said:

I have a question, if a person who never has an intention of disclosing their aspergers,  gets diagnosed by a psychologist that they have aspergers, but the person doesnt care about actually getting a paper saying so, does it really matter? do you really need the paper?

Short answer: NO.

You don't need it, and nobody can force you to disclose that you have Aspergers.

The only time you will have to be honest about it, is if you try to get a job with high security status. They may have special requirements about people's mental health. It doesn't mean you can't get the job, it just means they will want to know, that you have a condition, and make sure it isn't a problem for you to do that job.

But anywhere in the private sector, your personal files are personal. You decide who and if someone needs to know. And a psychologist is bound by the law, to not disclose any personal information about you. :)

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Gone home
On 06/03/2016 at 9:33 AM, Lefki said:

 

Hey guys!

I just wamted to ask if you have used your diagnosis somewhere.. I mean, ok I got my diagnosis but where will I really use the paper? Will someone ever ask me to show him this? Those questions maysound silly and sorry for that but I am trying to figure it out....and I can't

 

When I asked for help with employment matters I was asked to supply a copy of the diagnosis by the government agency I was referred to. I refused to give a copy but did allow the person to read it. (I won't name the agency here, but regarding my needs were a serious waste of time, resources and no help at all, even to the extent of telling me that my disappointment in them was mental illnness, not aspergers, and that it was OK to be mentally ill ... sorry but they were idiotic and full of bull beyond all reason).

Anyway, I would keep it safe just incase you need a specialist service one day in the future, just to prove it exists ... or maybe a future employer may need proof if you disclose in the future. Another scenario may be future legal wrangles. Its just very prudent to keep safe.

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Lefki

And one more question. I ve seen on the internet a girl's diagnosis and it had so many pages like a huge book. Is your diagnosis containing so many pages as well? Because mine is only a page saying that I have it. Maybe this is because I went to a private psychiatrist? 

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RiRi
6 minutes ago, Lefki said:

And one more question. I ve seen on the internet a girl's diagnosis and it had so many pages like a huge book. Is your diagnosis containing so many pages as well? Because mine is only a page saying that I have it. Maybe this is because I went to a private psychiatrist? 

@Lefki My diagnosis has pages. It wasn't like a book, but it wasn't a page/couple of pages either. I think it might just depend on the person diagnosing, like their style of doing things. At least that's what I think. :) 

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not around here anymore
6 minutes ago, Lefki said:

And one more question. I ve seen on the internet a girl's diagnosis and it had so many pages like a huge book. Is your diagnosis containing so many pages as well? Because mine is only a page saying that I have it. Maybe this is because I went to a private psychiatrist? 

Mine was quite a few pages, but I wouldn't worry about it. I expect the report length often varies on the psychologist, some of them perhaps cannot be bothered to write as much :lol: Being serious though, I would think report length can vary, but this wouldn't affect the severity or strength of diagnosis, just in case you are worried about that (which you may not be, I am just making sure :))

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Pinky and his brain

@Lefki Mine is also just a single piece of paper. It actually only has one or two sentences on it. Saying that I have a condition with number xxxx (don't remember the code), also known as Aspergers syndrome. That's it. :lol:

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Lefki

then it may be just a single page because he didn't write all the symptoms or about the anxiety disorder etc...  @<Deleted> yes I was thinking about it. Not that I am going to use it somewhere... I haven't even told my parents yet because I don't know how and because I have always found it very difficult to ask for help. 

@Pinky and his brain lol our doctors really have an ancient Spartian spirit!!!!! Their moto must be "Less is more"!!!

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Gone home

There may be more info in a medical file somewhere as the clinician would have to evidence his/her diagnosis somewhere.

In the UK we have the data protection act and can request copies of info held on us by any organisation. Usually there is a nominal fee of around £10. We can also request copies of medical records.

I have an 11 page summary of specific characteristics (including a page of screening instrument scores) and a 4 page written summary of the diagnostic assessment appointment.

Interestingly she positively relates aspergers as an ASC (autistic spectrum condition) - not ASD (autistic spectrum disorder).

I really find the term 'disorder' naive and simply wrong. I don't know why so called charities and autism bodies cling to the term 'disorder' as for me its very much an internal 'order'. There is no disorder involved. 

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Pinky and his brain

@Going home I agree. ASC (Autism Spectrum Condition) would be the more logical description. It does not have to be negative at all. Some of the side effects may be negative for the individual, but that's mostly due to a society, that does not accept people for who they are.

 

Most charities, not only for autism, only exist because the people running it, want to make some easy money. They thrive on people's pity.

And no, I'm not saying ALL charities are bad. But quite a lot of them, spend most of the collected money on "internal expenses". That covers everything from high manager salaries, expensive cars and travelling around the world on 1st class. Some charities only pass on less than 20% of the collected money to the people they claim to help.

Sorry for changing the subject, but fake charities is something that really annoys me. :blush:

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Gone home
16 minutes ago, Pinky and his brain said:

Most charities, not only for autism, only exist because the people running it, want to make some easy money. They thrive on people's pity.

And no, I'm not saying ALL charities are bad. But quite a lot of them, spend most of the collected money on "internal expenses". That covers everything from high manager salaries, expensive cars and travelling around the world on 1st class. Some charities only pass on less than 20% of the collected money to the people they claim to help.

Sorry for changing the subject, but fake charities is something that really annoys me. :blush:

I'm so with you there ... I don't even want to get started on that subject ... the corrupt .... 

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Gone home

 @Pinky and his brain Not to mention the extra (hidden) 'deferred payments' (wages) charity executives sneakily take on retirement in addition to lucrative pensions ...b#st#rds.

Better stop before I start :(

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Nesf
On 8/3/2016 at 0:49 AM, Lefki said:

And one more question. I ve seen on the internet a girl's diagnosis and it had so many pages like a huge book. Is your diagnosis containing so many pages as well? Because mine is only a page saying that I have it. Maybe this is because I went to a private psychiatrist? 

My diagnosis consists of a 4 page report summarizing the diagnostic assessment. I also have a private diagnosis, and was worried about how valid it was because I was just given an interview, without any further testing, IQ test or any of the other tests that other people say that they had to get diagnosed. I had a lot of doubts about it at first. But I now know that one or two other people had similar diagnoses, the psychiatrist isn't obliged to give all those tests if he feels he doesn't need them to make the diagnosis.

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