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Saoirse

Confused about "working diagnosis"

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Saoirse

Hello,

Previously, in the symptom area of this forum, I wrote about symptoms I had and that I suspected I had Aspergers. Well, earlier this week I had a mental health assessment and got the results back today. The letter said, "Working Diagnosis of Asperger's Syndrome to be determined by our Consultant Psychiatrist in a follow-up appointment."

Basically, I am confused as what this means. Do you guys have any thoughts?

Thanks,

Saoirse

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RiRi

Hi @Saoirse, I'm not from your area (England), but it sounds like you're well on your way to getting officially diagnosed. :) How I interpret what is says is that they'll tell you the results in the follow-up appointment. I wish you good luck. :)

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Dont fit in on here

Thats strange for them to say that imo :S that wasnt said to me the psychologist i saw just said she 100% certain i have it and that she will write report out and then send it through post and i had to sign for it

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Saoirse

@DebzMata08 I think they want to confirm in a follow-up appointment? Either confirm Aspergers or confirm the working diagnosis. I am also not sure what use a working diagnosis would be. I have also been referred to another organisation for an Asperger's assessment. :huh:

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RiRi

@Saoirse I guess sometimes psychiatrist/psychologists want to confirm before they make a final result? The working diagnosis to me sounds exactly what is written, that they are working on the diagnosis. 

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Dont fit in on here

@Saoirse that sounds confusing :S

@Makelets yeah you could be right :)

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Gone home

@Saoirse As you've been referred to  an external specialist for the aspergers diagnosis you are in a multidisciplinary (several organisations) situation with the psychiatrist being the kingpin for the casenotes within the nhs (if you are uk).

Try not to worry, the psychiatrist  (with their years of experience) will 'determine' the answer for the nhs from the formal external aspergers assessment

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Miss Chief

It sounds to me like they think you have it (hence the working diagnosis part) but want a psychiatrist to confirm the diagnosis (hence the follow up) but they must be pretty confident to have stated that already.

What is odd is I didn't think they were diagnosing AS any more, I thought they were focusing on the hypersensitivity side of it or using High Functioning Autism as the diagnosis now. I seem to recall something about this when the latest DSM manual came out? I think it was mentioned on these forums so perhaps whoever posted it will see this and post.

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collectingrocks

The specialists that have seen you over time will have built up a picture of signs and traits etc exhibited by you and have in their minds what the likely diagnosis is likely to be. It may be that you fit many of the "classic" signs on the spectrum but the specialists aren't sure at this stage where you fall exactly. Once the psychiatrist has all this key information about you - and has seen you personally, an official diagnosis will be made. 

The specialists are "working on it" and will obviously be exchanging information about you between themselves and the psychiatrist and no doubt, be referring to clinical textbooks such as the DSM V for example

 

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BDEGRD

im not sure what all that means other than it seems their dragging it out to make a few more bucks.  I went in for a 2 hours assessment, psychologist told me that I do have it, and that was that.  If I wanted a full written report though I would of had to do a 6-8 hour sort of thing.  I opted for an abbreviated version.  For me I personally don't really need it on paper.

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Dont fit in on here

@BDEGRD in uk if they feel we actually need proper help we dont have to pay for a diagnosis all my appointments have been through the NHS and i havent had to pay any money to see a psychologist and i still dont pay money to see a psychitrist 

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Nesf
10 hours ago, Miss Chief said:

It sounds to me like they think you have it (hence the working diagnosis part) but want a psychiatrist to confirm the diagnosis (hence the follow up) but they must be pretty confident to have stated that already.

What is odd is I didn't think they were diagnosing AS any more, I thought they were focusing on the hypersensitivity side of it or using High Functioning Autism as the diagnosis now. I seem to recall something about this when the latest DSM manual came out? I think it was mentioned on these forums so perhaps whoever posted it will see this and post.

@Saoirse is in the UK, so they are probably using the ICD 10 rather than the DSM 5, I think that people are still diagnosed with Aspergers in the UK.

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Gone home
2 hours ago, Nesf said:

I think that people are still diagnosed with Aspergers in the UK.

I was told that UK Aspergers diagnosis's will cease - or at least be not made from May this year ... replaced with ASC / ASD. As usual though I may be completely wrong, but was told this last Sept by autism specialist assessing me

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BDEGRD
8 hours ago, DebzMata08 said:

@BDEGRD in uk if they feel we actually need proper help we dont have to pay for a diagnosis all my appointments have been through the NHS and i havent had to pay any money to see a psychologist and i still dont pay money to see a psychitrist 

UK has a better system then here in Canada.  It is possible to get a free diagnosis here but it is a 1 year waiting list.

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Dont fit in on here
6 hours ago, Going home said:

I was told that UK Aspergers diagnosis's will cease - or at least be not made from May this year ... replaced with ASC / ASD. As usual though I may be completely wrong, but was told this last Sept by autism specialist assessing me

They have ceased it already your not wrong mine is down has ASD ive just seen 

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Miss Chief
6 hours ago, Going home said:

I was told that UK Aspergers diagnosis's will cease - or at least be not made from May this year ... replaced with ASC / ASD. As usual though I may be completely wrong, but was told this last Sept by autism specialist assessing me

Perhaps it was you who posted about this before? I definitely remember it coming up and I wouldn't have paid much attention if it didn't effect the UK as well, since that's where I live ;) 

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RiRi

@Miss Chief I think this may be the thread you're talking about? :) 

 

In the US ASD is being used, as far as I know, but I don't know about the UK.

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Saoirse

Thank you for all of the clarification. I am now feeling anxious more than anything. I don't know what to think about it. Part of me worries that I acted a certain way to try to convince them for the diagnosis. I have been obsessing over this and worrying ever since.

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Miss Chief
4 minutes ago, Saoirse said:

Thank you for all of the clarification. I am now feeling anxious more than anything. I don't know what to think about it. Part of me worries that I acted a certain way to try to convince them for the diagnosis. I have been obsessing over this and worrying ever since.

Sounds like a typical AS trait ;)  

EDIT: I meant that to be reassuring not patronising ;) 

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Saoirse

@Miss Chief , I just don't know how to shut my brain off. It is like I have 100 different thoughts and agendas competing for my attention. I feel like I need to be in a place with zero distractions to decompress.

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RiRi
5 minutes ago, Saoirse said:

Thank you for all of the clarification. I am now feeling anxious more than anything. I don't know what to think about it. Part of me worries that I acted a certain way to try to convince them for the diagnosis. I have been obsessing over this and worrying ever since.

@Saoirse I obsessed and even had nightmares over this while waiting for my diagnosis. I was in a similar situation to you. I wasn't told whether I fit the criteria based on the assessment. There were other things that needed to be gathered I guess, to make the diagnosis. But the wait made so verily anxious. I was scared I wouldn't get diagnosed, I talked to a lot of people on here. The wait was hectic. I wish you the best of luck and hopefully you get your diagnosis. 

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Nesf
1 hour ago, Saoirse said:

Thank you for all of the clarification. I am now feeling anxious more than anything. I don't know what to think about it. Part of me worries that I acted a certain way to try to convince them for the diagnosis. I have been obsessing over this and worrying ever since.

Yep, I did this too. I got my diagnosis, and actually i still worry about it... but as @Miss Chief points out, this is a typical trait :)

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Miss Chief
1 hour ago, Saoirse said:

@Miss Chief , I just don't know how to shut my brain off. It is like I have 100 different thoughts and agendas competing for my attention. I feel like I need to be in a place with zero distractions to decompress.

This is also something I struggle with, particularly when I am trying to go to sleep. I have made a post about this before, it is like the longer I am awake the better (faster) my brain works... I find this kind of addictive which means I have an atrocious sleep pattern.

Here is the thread I made about it if your interested:

 

 

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Miss Chief

@Saoirse I was thinking about what you said and I remembered something that might help you. This perhaps isn't the best copy of the article but if you scan through this to get the general idea then do a YouTube search you should get the gist of it ;)

 

Banana Tea

 

I will admit, I haven't tried it yet, myself, I am currently using prescribed sleeping tablets when it is really bad and Melatonin or Valerian Tincture when it is more manageable (you might also find those last two helpful as well, both are available from health food shops or online).

Hope that is some help at least :) 

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RiRi

@Miss Chief Thanks for sharing. I also have trouble falling asleep. Maybe some day I'll try it. :)

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