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Squirt

Diagnosis Process

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Squirt

Hi there,

I believe I have Asperger's as it appears to be the only thing I can 95% relate to. I am yet to go to my GP about the topic. I am just curious on how the whole process will turn out, once I have made an appointment with my GP and I attend, I will hope that they will refer me to an adult Asperger's Specialist.

What I would like to know are the following;

• How many people are there in each meeting? (e.g. Interviews, assessments, results). 

• What are the waiting times roughly?

• Would it be better to go with some material I have created to help understand why I think I have it?

• Would attending each appointment with my partner help? 

• What help is available after diagnosis (if required). 

I have carried out multiple questionnaires and each one suggests that I most definitely am on the spectrum. 

I am a 21 year old female. 

Any information would help greatly. 

Many thanks :)

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Dingo

I'm not sure where you are.  I'm in Canada so I'm not sure how helpful this is.  I had about 6 appointments and they were just me and the psychologist for all except one appointment.  For one appointment she wanted to talk to my parents about my childhood.  My first appointment was about 6 months after I got on the waiting list.  It took another six months or so for my doctor to give me my diagnosis.  I found it to be really helpful to write things down before my appointments.  I was able to email notes to my doctor before our appointments so she could review them before we met.  I can't say whether it is a good idea to take your partner or not.  Your partner may be able to offer helpful information but you also may be more comfortable to talk to the doctor on your own.

 
 

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Soloist
On 10/31/2016 at 1:57 AM, Squirt said:

Hi there,

I believe I have Asperger's as it appears to be the only thing I can 95% relate to. I am yet to go to my GP about the topic. I am just curious on how the whole process will turn out, once I have made an appointment with my GP and I attend, I will hope that they will refer me to an adult Asperger's Specialist.

What I would like to know are the following;

• How many people are there in each meeting? (e.g. Interviews, assessments, results). 

• What are the waiting times roughly?

• Would it be better to go with some material I have created to help understand why I think I have it?

• Would attending each appointment with my partner help? 

• What help is available after diagnosis (if required). 

I have carried out multiple questionnaires and each one suggests that I most definitely am on the spectrum. 

I am a 21 year old female. 

Any information would help greatly. 

Many thanks :)

I'm just starting to go through this process myself (GP appointment today) so I don't have all the answers, but have found out a few things about it.

Firstly, the length of time it takes and also the diagnosis process itself does vary by which area you are in. I had read that it can take up to 2 years to get a specialist appointment after being referred by a GP, but when I enquired about it found out that it's just 4-6 weeks in my area so you may be lucky.

To go through your questions one by one:

• How many people are there in each meeting? (e.g. Interviews, assessments, results). 

Should be only 1 plus whoever you bring with you.

• What are the waiting times roughly?

Varies by area, I've read that it can be up to 2 years but could be much less.

• Would it be better to go with some material I have created to help understand why I think I have it?

Not sure, but it can't do any harm.

• Would attending each appointment with my partner help? 

Yes, to give an external viewpoint. I've heard that some specialists would like a parent to attend if possible to provide information about how you were in childhood.

• What help is available after diagnosis (if required). 

I don't think there is any specific medical help available from the NHS for Asperger's Syndrome but there may be support group and other services. Again, it depends on the area you're in.  Also, there may be benefits available if you need them.

You can get some more information about diagnosis on the NHS website: http://www.nhs.uk/Livewell/Autism/Pages/Diagnosisinadults.aspx

The National Autistic Society also has useful information: http://www.autism.org.uk/

 

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Squirt

Hi there,

Thankyou for taking the time out to answer my questions :) I really appreciate it. I have just made an appointment at my GP which is due in a couple of days so as you can imagine, I am anxiously waiting! 

I struggle immensely with anxiety too which doesn't particularly help as sometimes I can struggle to talk, especially to strangers. I have discussed this a lot with my partner and we are both going to attend the appointment mainly for moral support.

I have decided that I will bring some evidence as to why I think I may be somewhere on the spectrum.

I will keep you posted with my process :)

Thanks again :D

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Soloist
23 hours ago, Squirt said:

Hi there,

Thankyou for taking the time out to answer my questions :) I really appreciate it. I have just made an appointment at my GP which is due in a couple of days so as you can imagine, I am anxiously waiting! 

I struggle immensely with anxiety too which doesn't particularly help as sometimes I can struggle to talk, especially to strangers. I have discussed this a lot with my partner and we are both going to attend the appointment mainly for moral support.

I have decided that I will bring some evidence as to why I think I may be somewhere on the spectrum.

I will keep you posted with my process :)

Thanks again :D

I was also very nervous about my appointment on the day and even felt like cancelling (except that you need to give them 24 hours notice so I couldn't!).

Just think, it's only 10 minutes out of your life and the possible benefits outweigh any short term anxiety. If you do look anxious actually it probably helps your case to be referred!

The GP did ask me how I came to think I had Asperger's which wasn't that difficult to answer. Also, I did tell him that I had done the AQ test which indicated likely autism so maybe this helped, though he seemed very willing to refer me before I had even asked.

If you wanted some additional evidence you could do the AQ test online and show/tell them the results.

 

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Squirt
On 20 November 2016 at 5:04 PM, Soloist said:

I was also very nervous about my appointment on the day and even felt like cancelling (except that you need to give them 24 hours notice so I couldn't!).

Just think, it's only 10 minutes out of your life and the possible benefits outweigh any short term anxiety. If you do look anxious actually it probably helps your case to be referred!

The GP did ask me how I came to think I had Asperger's which wasn't that difficult to answer. Also, I did tell him that I had done the AQ test which indicated likely autism so maybe this helped, though he seemed very willing to refer me before I had even asked.

If you wanted some additional evidence you could do the AQ test online and show/tell them the results.

 

Hi Soloist,

I'm slightly annoyed due to the fact the doctors have had to push back my appointment a couple of weeks just as I was getting my head around the situation. Though, I suppose these things happen. 

I have in fact taken the AQ questionnaire which was suggested there is a very high indication of Asperger's Syndrome and that I should at least seek professional advice. I have also taken the SQ which I believe is about empathy towards others which again had the same outcome. 

I have since spoken to my mum about this whole situation and surprisingly she was completely on board. She in fact has thought that she has some indication of traits which could be what I have stemmed from. (I believe it could be genetic). 

Thankyou all again for your kind advice! :D

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Squirt

Hi there,

I have an update!

So I had my GP appointment today after stressing and almost cancelling!

He was so nice, it really helped calm me down abit. I took some notes with me which helped a lot. He said he will refer me to an Asperger's clinic so hopefully this is the start of a diagnosis!

Thanks :)

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Squirt
On 3 December 2016 at 11:01 AM, Soloist said:

@Squirt That's excellent news! :)

UPDATE...

Ok, so. As you are all aware, I attended a GP appointment regarding possible Asperger's Syndrome in early December 2016. The Doctor agreed the possibility so he then went ahead and referred me to an Austism Clinic. 

I then received a letter from the Austism Clinic to fill out a form inserting a member of my family (or someone who knew me well from the age of 0-5), so I attached my mothers details. 

They later rang her for an informal interview regarding my early childhood and current life (7/1/17). It took just over 2 hours. They went into so much detail. 

A day later (yesterday), I received a phone call from them to give me an appointment for them to ask me a few questions which can also take up to 2 hours, though, ofcourse I did not answer, so my Mother rang them back. They appointed me with 2 appointments but stated, depending on how the first one goes, I may not need the second one (I don't know what they mean by that). 

My first appointment is tomorrow at 10am. I'm struggling to understand if it being so quick, is this an indication of a good sign or not?

I am also so anxious as I have not mentally prepared myself for it to be so quick!

Since my first GP appointment, I have been self-doubting myself greatly and I would really appreciate other people's opinions and experiences so I am aware of what to expect. 

Many Thanks :)

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Squirt

I do apologise, I meant to say (7/2/17). 

Sorry for the confusion. :)

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Gone home
1 hour ago, Squirt said:

My first appointment is tomorrow at 10am. I'm struggling to understand if it being so quick, is this an indication of a good sign or not?

Might have got a cancellation.

They were interested in childhood traits as that will indicate that you have always been autistic in nature and were born autistic. Thats why they spoke to your mother.

Its normal to be worried of the unknown but try not to. They will just want to find out who you are as a person and note any autistic traits for diagnostic purposes. 

If you haven't already they may want you to fill out a questionnaire / self assessment to see where you score on the spectrum.

I filled mine out with my son and partner. I was diagnosed in middle age and had an excessively optimistic view of myself as I had been 'passing' for so long. It was useful them being there as they were able to point out that I was answering some questions inaccurately. I struggle with self assessments so that was useful. I felt I knew myself very well, but in relation to the type of questions, not so, as the questions included questions about others perception of me.

I took with me typed up examples of characteristics / traits and things  I wanted to discuss, as otherwise in the anxious state my mind wouldn't have worked very well.

 

 

Edited by Going home
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Squirt
3 hours ago, Going home said:

Might have got a cancellation.

They were interested in childhood traits as that will indicate that you have always been autistic in nature and were born autistic. Thats why they spoke to your mother.

Its normal to be worried of the unknown but try not to. They will just want to find out who you are as a person and note any autistic traits for diagnostic purposes. 

If you haven't already they may want you to fill out a questionnaire / self assessment to see where you score on the spectrum.

I filled mine out with my son and partner. I was diagnosed in middle age and had an excessively optimistic view of myself as I had been 'passing' for so long. It was useful them being there as they were able to point out that I was answering some questions inaccurately. I struggle with self assessments so that was useful. I felt I knew myself very well, but in relation to the type of questions, not so, as the questions included questions about others perception of mI took with me typed up examples of characteristics / traits and things  I wanted to discuss, as otherwise in the anxious state my mind wouldn't have worked very well.

 

 

Hi there,

Thankyou so much. I'm hoping that it's going to fly by (the time).

I'm not sure if I would like my mother in with me in the assessment room or not. She's coming with me for support. 

If you don't mind me asking, do you have any support post diagnosis?

Many Thanks :) 

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Gone home
5 hours ago, Squirt said:

If you don't mind me asking, do you have any support post diagnosis?

I had 5 sessions. I was diagnosed mid-life due to employment issues. The sessions were of limited value, but did validate my feelings on matters.

The only 'support' was here really. Also researching autism on the net has helped me understand my past (not that I ever wanted to) and come to terms being autistic.

The diagnosis would have had more value earlier in life.

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Squirt
On 9 February 2017 at 6:16 PM, Going home said:

I had 5 sessions. I was diagnosed mid-life due to employment issues. The sessions were of limited value, but did validate my feelings on matters.

The only 'support' was here really. Also researching autism on the net has helped me understand my past (not that I ever wanted to) and come to terms being autistic.

The diagnosis would have had more value earlier in life.

Thankyou for your reply. 

I had my first assessment and they told me that I should get a result after my second assessment which is next week. 

I'm anxious as I can't help but think it's a bad sign if they have a result so quickly. 

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Nesf

@Squirt I don't think that it is a bad sign that they have a result so quickly. When I had my assessment, it was really quick, I had one interview which my mum also attended, and about 20 minutes in he said that he thought I had mild Asperger's. He asked me some questions and my mum questions about my childhood. After 2 weeks I received a written report with the diagnosis. The procedure varies a lot, depending on the expertise of the clinician and his/her confidence in making the diagnosis, or the policy of the autism service you attend. Some people like me, have only one interview with one clinician, others have several interviews with several clinicians. Some have a battery of tests, such as IQ and cognitive functioning tests, some have none at all.

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Squirt
On 11 February 2017 at 3:22 PM, Nesf said:

@Squirt I don't think that it is a bad sign that they have a result so quickly. When I had my assessment, it was really quick, I had one interview which my mum also attended, and about 20 minutes in he said that he thought I had mild Asperger's. He asked me some questions and my mum questions about my childhood. After 2 weeks I received a written report with the diagnosis. The procedure varies a lot, depending on the expertise of the clinician and his/her confidence in making the diagnosis, or the policy of the autism service you attend. Some people like me, have only one interview with one clinician, others have several interviews with several clinicians. Some have a battery of tests, such as IQ and cognitive functioning tests, some have none at all.

Thankyou so much!

She seemed pretty happy with how it was going. My first assessment I brought my mum with me too and it was suppose to be a min of 90 mins, though, it only lasted 40 mins and asked my mother to attend with me again the next time (a weeks time).

Thankyou for your response, it really helps :)

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Squirt

UPDATE!!!

I have just had my final assessment this morning, and they told me there and then the results. 

I have finally been diagnosed with Asperger's Syndrome! I have mixed feelings but I guess atm I'm pretty glad as it means I am finally able to get the help I need. 

Thanks everyone for the replies and help :)

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Soloist
4 hours ago, Squirt said:

UPDATE!!!

I have just had my final assessment this morning, and they told me there and then the results. 

I have finally been diagnosed with Asperger's Syndrome! I have mixed feelings but I guess atm I'm pretty glad as it means I am finally able to get the help I need. 

Thanks everyone for the replies and help :)

Congratulations - I'm glad it went well and that you are happy with your diagnosis! :)

I was also diagnosed with Asperger's Syndrome last month and it is a relief to know definitely and start to understand things with a new perspective.

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RiRi

@Squirt Congratulations!!! :) I haven't been following this thread, but it's always great seeing other fellow aspies getting their diagnosis. :) 

@Soloist Congratulations as well. :) 

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Squirt

Thankyou :)

It's a relief to know the reasons behind my behaviour and actions. 

Plus, being on this Website, I don't feel so alone :) 

Thankyou again?

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Sofi

Congrats on your diagnosis :D 

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