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Fighter101

Diagnosis

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Fighter101

The doctor doesnt think I have aspergers, because most aspies are not aware of whats wrong with them other people see it, is that true?

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Gone home

I don't believe thats true. It may be for some, but aspies tend to be observant. I think most will know they are different ...

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RiRi

@Fighter101 Hmm. I don't think the reason the doctor has given you is a good reason to say someone doesn't have Asperger's. Not everyone's the same. Some may have self-awareness, some may not. Or even if they don't have self-awareness, when others point out their peculiarities (to put it that way), they become aware. So it's not like they're unable to see it. Yes, maybe some of us can't see it on our own, but we're capable once it is pointed out to us. Some just notice on their own I guess? I don't know if I was ever self-aware per se, but when I encountered the autism subject and researched further, I found Asperger's and I saw that it was possible that I had that. Then once I figured out there's a huge possibility I'm on the spectrum, as a young adult, I had a huge surge of self-awareness and was aware of every move I was doing in the present and everything I had done in the past that was related to being on the spectrum.

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Fighter101

Yeah I was thinking so too, she thinks I have depression but my mood is always triggered by little things that only come from my thoughts and people I rely on

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RiRi

@Fighter101 You could have both? Could you ask your doctor for a referral to see someone who specializes in diagnosing people with autism/on the spectrum?

You could write a list of things that make you think that you're on the spectrum? There must be some reason(s) that made you think you're on the spectrum. 

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Miss Chief

I got diagnosed because I thought I had AS so we can definitely know about it.

Here is a quote from the National Autistic Society: "It's quite common for people to have gone through life without an autism diagnosis, feeling that somehow they don't quite fit in." Link here: http://www.autism.org.uk/about/diagnosis/adults.aspx

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Nesf
9 hours ago, Fighter101 said:

The doctor doesnt think I have aspergers, because most aspies are not aware of whats wrong with them other people see it, is that true?

Not, not true - People with Asperger's without a diagnosis grow up feeling that they don't fit in, can't relate or connect, or feel that others treat them differently. We can see that we are being treated differently, we can see that we are different. We might not know that it is Asperger's specifically, but we usually know that we are different. I would see a different doctor and get a second opinion from someone who is better informed about autism.

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Sanctuary

The statement made by the doctor is very worrying - that she could have such a view and then be involved in the diagnosis process. Is she your GP or a specialist of some kind? Even if she is your GP rather than a specialist in AS she should know better or at the very least refrain from taking a view and refer you to someone more informed. GPs are the gatekeepers to more expert analysis and diagnosis and they need to be very careful about ruling out AS (or any other condition) unless they are certain of their facts.

Unfortunately I think these sorts of views and other misleading ones about AS can deter many people from seeking a diagnosis. As others have mentioned many who have AS have had years of feeling different - and other people often making it clear they are "different". They have often tried very hard not to be different and found they cannot do so. There may be a small number of Aspies who genuinely don't feel themselves to be different but I imagine the great majority are only too aware that they "don't fit in". It's certainly a case of getting a second - hopefully more genuinely expert - opinion. 

Edited by Sanctuary
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Myrtonos

I've heard that Self-Diagnosis is not recommended, and may well be anecdotal.

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Miss Chief
20 minutes ago, Myrtonos said:

I've heard that Self-Diagnosis is not recommended, and may well be anecdotal.

This isn't about self-diagnosis... this is his doctor telling him that he cannot have AS/ASD because he suspects he has it, that is not right at all, almost all adult diagnoses are done because the adult knows they have something different about themselves and requests assessment (not necessarily an AS assessment but certainly a psychiatric assessment to find out why they don't fit in/are different).

If I was a child now I strongly believe I would have been diagnosed before reaching school even but as I was born in '81 there was no AS diagnosis (or ADHD for that matter) back then and by the time people were being diagnosed with those conditions I was about to leave school. I was 30 when I was diagnosed with AS and I got diagnosed with ADHD last week at 36, I wouldn't have been diagnosed with either if I hadn't suggested it to my doctor (granted I did write up a load of evidence to support my claim) which resulted in my being referred and assessed. I didn't self-diagnose I suspected and got a referral to be formally assessed by a doctor. You cannot get a formal diagnosis if your GP/family doctor won't refer you to be assessed.

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RiRi

I told my general doctor that I have now (haven't seem them in months though) that I've been formally diagnosed with ASD and what they asked me was, how is it possible that I wasn't diagnosed earlier/as a kid? I wondered what kind of question that was and it put me on the spot and the only thing I think I said it's not severe. No response after that. But, really, I don't know why I wasn't diagnosed earlier? Why is my diagnosis suddenly less valid if I wasn't diagnosed earlier? Also, that was not a very good response I gave, but I hadn't had a chance to think about it nor do I probably know the answer to that. She was definitely dismissive about it. I think some doctors are just very ignorant about the subject or not very good doctors? 

When I was even younger before I self-diagnosed with ASD, about a year before that, I tried getting a formal diagnosis before I knew a lot about ASD, a general doctor told me if I was sure I had ASD, I said yes and she gave me a referral, but I think she didn't know so she sent me to a psychiatrist. Long story short, I didn't get a diagnosis then. This doctor probably didn't know much, but at least she didn't dismiss it.

I think if general doctors don't know then at least they shouldn't discard/dismiss stuff, especially if they lack knowledge of it. For the insurance that I have, I didn't have to go through the general doctor to get a referral at least not for this, thankfully, I referred myself. 

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RiRi

I know that pronouns shouldn't matter due to a subject that is mainly unfamiliar to me, but I think the OP is a girl. If I remember correctly, she used to have a picture of herself when she first joined, but about an hour or so later, she removed it. 

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Eliza
On 10/19/2017 at 3:43 PM, Fighter101 said:

because most aspies are not aware of whats wrong with them

I don't think anyone would label themselves with Aspergers if they didn't really have it. Finding out is a relief, but it's also a shock and not the most fun realization. If you've done your research and know you have it, own it. Besides, doctors like to label people 'depressed' and then put them on meds.  Easy fix, big money.

12 hours ago, Miss Chief said:

If I was a child now I strongly believe I would have been diagnosed before reaching school

Ditto. Reading my teacher's notes on my kindergarten report cards is very telling.

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Fighter101
On 20/10/2017 at 11:32 AM, RiRi said:

@Fighter101 You could have both? Could you ask your doctor for a referral to see someone who specializes in diagnosing people with autism/on the spectrum?

You could write a list of things that make you think that you're on the spectrum? There must be some reason(s) that made you think you're on the spectrum. 

Yes a lot of it was because of socializing snd relating to people, self harshness, self hitting and twitching when anxious

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Fighter101
On 20/10/2017 at 9:51 PM, Sanctuary said:

The statement made by the doctor is very worrying - that she could have such a view and then be involved in the diagnosis process. Is she your GP or a specialist of some kind? Even if she is your GP rather than a specialist in AS she should know better or at the very least refrain from taking a view and refer you to someone more informed. GPs are the gatekeepers to more expert analysis and diagnosis and they need to be very careful about ruling out AS (or any other condition) unless they are certain of their facts.

Unfortunately I think these sorts of views and other misleading ones about AS can deter many people from seeking a diagnosis. As others have mentioned many who have AS have had years of feeling different - and other people often making it clear they are "different". They have often tried very hard not to be different and found they cannot do so. There may be a small number of Aspies who genuinely don't feel themselves to be different but I imagine the great majority are only too aware that they "don't fit in". It's certainly a case of getting a second - hopefully more genuinely expert - opinion. 

Yeah it was a new gp I saw, she is reffering me the psychologist, I just know im not depressed, my mood is always moderate but I still very independent and different in social gatherings. 

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Fighter101
On 21/10/2017 at 10:18 AM, RiRi said:

I know that pronouns shouldn't matter due to a subject that is mainly unfamiliar to me, but I think the OP is a girl. If I remember correctly, she used to have a picture of herself when she first joined, but about an hour or so later, she removed it. 

Yeah you're right, I'm a muslim as well so culturally it makes it harder for me to relate to people, I dont know every little thing is a challlenge for me with concentrating and talking naturally mostly

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Sanctuary
4 hours ago, Fighter101 said:

Yeah it was a new gp I saw, she is reffering me the psychologist, I just know im not depressed, my mood is always moderate but I still very independent and different in social gatherings. 

While it's disappointing the GP had the wrong idea about AS at least she is doing the right thing and referring you to someone with more expertise. Fortunately you knew about AS and was able to raise that as a possibility but other patients in the same situation who don't know about it could have just gone away with a diagnosis of depression which wouldn't have properly addressed their situation.

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