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  1. So, how old were you? And was this a good or bad thing? ie. I was diagnosed in my late teens and it kind of sucked...to be honest. Because along with hormones, I really didn't need something else to deal with. I feel like I could have got more support through school had I been diagnosed earlier.
  2. I have been thinking about ideas on what to do if you can't afford fees to see a therapist. Say someone who once bullied you can afford it. You could try persuading them to pay for the therapist. I'm thinking this because there may be some posters who haven't been officially diagnosed. Self-diagnosis is anecdotal. People tend to overinterpret their behaviour and may think they qualify for diagnosees that they don't have.
  3. Hi. I've just come back from the hospital (nothing serious), where I was totally confused and therefore, late for my appointment, because I had to park my car. I'm inexperienced in driving and cannot understand instructions on the phone very well (I did stop the car to talk on the phone of course). I need to physically see things to understand. So, they told me to go somewhere, then told me it wasn't possible to park there anymore, then told me somewhere else which put me in the wrong place because I didn't understand properly. 3rd time, I parked in a place I thought was possible. Then on walking to the reception, getting lost inside this massive hospital, I get to reception of the clinic, and they tell me that I can't leave the car where I left it! After even more confusion and events, added to my physical disability, I finally lost it and told them..."apart from my physical disability of M.E. and feeling so tired, I have a form of Autism and need instructions to be very clear, otherwise I get easily lost". I didn't shout, but I was clearly anxious and worn out. I feel guilty about mentioning it. I was only diagnosed last month. Because I don't outwardly do stereotypical things like repetitive movements, and don't seem classically autistic, I feel like I am using it as an excuse. That is the emotional side. Rationally however, I was every bit within my rights to mention it, because I am not able to multitask and understand instructions as well as them. I even had to walk around for 20 minutes trying to find out if it was possible to leave the car park, because there was a huge piece of scanning equipment attached to a truck trailer, blocking my exit, and the only way out had "No Exit" painted on the ground, so I had to get out the car and check with someone. To them it was obvious that I could break that rule and go out the no exit route, but I wondered if there would be cameras, if there would be immense danger (it was exiting on to a cross-road) etc etc, because I can't judge very well about when it's practical to break a rule and not to. Should I feel bad about mentioning my Autism when having difficulty with directions, and practical functioning in public? I honestly do feel a NT wouldn't have had as much problem as me just now, but then feel that maybe I am just a bit dumb with some things (no offence to my Aspie/Autie fellow beings). What do you think? Do you ever mention it when frustrated or unable to function in public? How do you feel about it?
  4. TheTheatreCat

    Could I have Aspergers?

    Hello there, I was chatting to my friends recently when we were all filling in a quesionare for something. One question was "what makes you different to your friends?" And a few of mine wrote "I have autism" (Aspergers or similar), and we were all surprised when they said this, as none of us knew that anyone in our group was autistic. Now, this was a very convenient way of me learning all this, but it led me to do some research, as I knew very little about Autism and Aspergers at the time, and wanted to make sure that I made the right approach and didn't worry them, now that they knew that I knew this about them. So, I looked up what having Aspergers affected, and what the symptoms were. It wasnt long before I realised that I too had quite a few of these symptoms. I took a few online tests, and they all came up as in the range of someone who had Aspergers. I thought to myself "it can't provide a real diagnosis" but it has been bothering me since. The traits I can relate with (from the list at http://www.webmd.com/brain/autism/tc/aspergers-syndrome-symptoms and other sources) include: difficulty to make and maintain friendships; random finger or hand tapping; strangely formal language; strict(ish) routine (on weekdays); one sided conversations about one obsessive topic (Theatre); domination of conversations (difficult for others to get words in edgeways); heightened sensitivity (especially to sound); difficulty to fit in with others; being bullied for being who I am (which is different to others) and not putting any emphasis on being "cool". I'm not sure really what to do and haven't told my parents about this yet as I'm not sure what to say or how they'll react! If, however, my suspicions grow, then I will definitely talk to them, but I thought I'd try on here first and see whether there is anyone here who can help me at all by saying "yes, you might have Aspergers" or "no, you're just being silly". Thank you!
  5. Hello, Previously, in the symptom area of this forum, I wrote about symptoms I had and that I suspected I had Aspergers. Well, earlier this week I had a mental health assessment and got the results back today. The letter said, "Working Diagnosis of Asperger's Syndrome to be determined by our Consultant Psychiatrist in a follow-up appointment." Basically, I am confused as what this means. Do you guys have any thoughts? Thanks, Saoirse
  6. I just saw a video of ten things you should never do in Dubai, I wonder what the autism situation is there.
  7. I approached my GP about getting assessed after having done several recommended online tests and read several books, as well as having been diagnosed with Ehlers-Danlos Syndrome which often goes hand in hand with autistic spectrum disorders. My GP is waiting to see if he can get funding in my area (Lincolnshire) though I read that I'm legally entitled to an assessment, so I'm confused. I'd just like to get on with it. What could I do? I have a child who is very like me (I think possible EDS and possible AS but have been told to wait and not to worry). Getting myself assessed first seems sensible. How can I speed things along?
  8. superpam

    My Aspie Traits

    So, after searching for a while (obsessively I must say) about how the traits can be different for girls, I wrote down what I believe can be a lot of my traits/characteristics related to Aspergers. Although I don't have a formal diagnosis and I'm still not 100% sure if I'm truly an Aspie, in my heart I feel I am most of the times for a lot of different reasons when I look at it both emotionally and rationally. My Aspie Traits - social awkwardness (not knowing what is adequate and ok to say or when to say it, not knowing how to carry/to end a conversation, although I've learned to adapt and can do it now, but it can be still really awkward many times) - bluntness (being too direct and not being aware when coming across as rude, arrogant or too blunt - or being aware only afterwards or even days later) - perceiving, understanding and communicating very black and white - being too intense and obsessive with especific interests (spending many hours searching, reading, learning everything that is to know about the same subject. For instance: Languages, Asperger's Syndrome, fully raw diet, parenting, education) - social hangover (feeling extremely tired mentaly and emotionaly after long periods of social interaction) - Not having the need or the urge to socialize or go out much, except with very close ones (if I go out twice a week that's probably enough social interaction and I don't need or feel like wanting more stimuly) - strongly dislike of light touch - quick temper (exploding or feeling an intense rage out of a sudden and without a warning, and cooling down just as quickly) - not having energy and hating small talk, superficial empty tedious talks especialy with people I don't know or don't feel connected to - overthinking and overanalysing everything all the time - being really annoyed by some sort of noises or when there's too much background noise (for example, in crowded places when everybody just talks loud at the same time, it's just too much stimuly to process and I tend to feel really irritated and willing to leave) - having a hard time keeping a job (it can be quite hard having to leave the house every single day at the same time, dealing with the same people constantly which can seem like a contradiction because I feel I like an need a routine, but just having to leave the house when there are days I don't feel like leaving the bed, can be really hard) - enjoying and needing a routine and familiar places that I feel comfortable at - not having too many friends or actually having friends, but only 3 that I trust 100% that they'll let me just be and respect my quirky unique different introvert way of being, the real me (which very few people actually have seen and truly know) - prefering one on one interactions (that way I can really connect with them and we get to know each other, to have deep intelligent badass talks) - dislike going out in groups or engaging conversation with a lot of people at the same time (which I find confusing, superficial, pointless, uninteresting and a waste of time. If I'm with a group of friends I really like and have a connection with, I can enjoy it. But otherwise, I'd prefer to just watch and be quiet and I will enjoy it unless I feel like I have to participate, talk or answer questions) - very creative and imaginative. I have my own world and reality inside my head and life is so much better inside my world than reality (Reality is a lovely place, but I wouldn't wanna live there.) - I tend to to everything I can by myself. I love self learning, to taught myself things and I'm good at it. For example: English, French, crafts, learning ideas/concepts and how to dos and succeeding when I try to do it like cutting my hair just by watching videos and such - extremely loyal with strong inner principles that are very important and serious to me - high sensitivity and picking up on others emotions and energies like a sponge - picking up details everyone misses, hidden meanings, abstract ideas - thinking outside the box, coming up with creative solutions - feeling different my whole life, not being able to fit in anywhere (not feeling truly comfortable to be me or really accepted) - although I'm not picky when it comes to food, I can eat the same thing everyday without a problem (like pasta, or like when I was in the hostel in Guarapari. I ate omelete (always prepared the same way: eggs, cheese, tomato, pimenta calabresa and I would eat it with mostarda. I did it for 2 weeks every single day, not noticing it until now) - doing things in a certain order like showering, or the way I walk the stairs when arriving home (taking 2 steps at a time even when tired), doing certain things in a certain way and never changing it, like it feels safe/familiar/predictable - feeling anxious when knowing I'll have to socialize with people I don't know very well or/and in new places I've never been too. Having to prepare myself psychologicaly for that and still feel very anxious, afraid, not comfortable - expressing myself and my thoughts way better on writing, rather than talking - losing track of my thoughts while I'm talking or trying to explain something and forgetting what I was just saying and taking too long getting back to it or not remembering it at all (which difficults a lot talking to unknown people, because of the awkward silences and not being able to have a natural flow on the conversation) - having a really complex mind with thoughts, sub thoughts, sub sub sub thoughts. Constantly making connections and spoting patters in everything and everyone - having a brain that doesn't shut up, is always active, that take in a lot of information/details/subtleties at the same time and can't help to analyse everything all the time (both internaly and externaly). Sees a puzzle in everything and collect the pieces together with time until it makes clear sense - I feel like I adapted so well sometimes that it is actually quite common for me to hear "you, an introvert? But you're such an extrovert!" (No, I'm not, trust me.) That's just an example of how I fake it so well, and how I managed to adapt socially (although I can still be very awkward sometimes) - I prepare myself before going somewhere like I ponder first what I might need/always think ahead (for example, if I know I'll stay out for long, I bring water, think about where I can buy something to eat near where I will be - I hardly ever forget anything from keys to phone, charger, some paper or anything I know I will need that day. I have all planed out so I dont have to worry about it later. It actually saves a lot of energy and it prevents anxiety which is good, because Im already too anxious - having a hard time learning and remembering subjetcs in school that are taught oraly like History and Geografy So, that was HUGE and I apologize for that. I would really like to know how much can you all relate to what I believe are my traits and do you think they all can be related to being an Aspie or maybe not. Thank you for being lovely and welcoming to the forum on my first post. I already like it here a lot <3
  9. What did you do after getting officially diagnosed (e.g. did you join support groups, go out more, etc.)? How did your life change since you got diagnosed?
  10. I have an official diagnosis, but I worry about it a lot and have quite frequent feelings of paranoia, because my diagnosis didn't follow the same procedure as it did for nearly everyone else. I was just given an interview with a neuropsychiatrist where I was asked a lot of questions, my mum was asked some questions, and about 20 minutes in he said that he felt I had Asperger's syndrome, and at the end I was told my diagnosis. No tests, no further appointments, nothing. Can he really know that I have AS after 20 minutes? I don't understand why I wasn't asked back for further testing or appointments, I thought that they needed to test people before giving a diagnosis. Also, I read a lot on forums and see that other people are different to me or have difficulty with some things that I don't have trouble with or have a specific trait that I don't have, or that I work, have a relationship and am too independent to be diagnosed, I'm too 'normal' or function too well, then I start to worry that I might not really have AS, and that others on the forum might think that I don't really have it and that I shouldn't really be here at all. I have a lot of such paranoid thoughts. I know that people with ASD are all different, but that doesn't stop me worrying. Most people worry about whether they have ASD before their diagnosis, but I'm worrying about it after my diagnosis. Does anyone have any advice on what I can do to be reassured and stop worrying? Does anyone else feel this way?
  11. My diagnostic report says that I have moderate Asperger's Syndrome, but elsewhere it says that I'm "high functioning." Is this a contradiction? Is it possible to be 'high functioning' and yet have a moderate, or more severe level of autism? Or does "high functioning" mean, by definition, that your ASD is mild?
  12. ... At a time! Despite the name of the thread, this is not about the song "One Little Victory" by Rush. No, this is much more serious (and not about music.) I realise that I've never formally introduced myself on the forum. And I also don't think I've ever posted the story of how I was diagnosed, at least not publicly. I won't go too much into either. And I won't talk about how the Danish education system works either, even though it's a part of this story. I will however, talk about what has happened to me in my life these past 5 years. The good and the bad. I'm posting this (even though it might be utter rubbish, or you might not care) because I feel that it might give some of you hope. Or at least something to read when you're bored... In fact, you may want to grab a snack, as it's going to be a long one! Going back to my childhood, I've always known I was different in some way. I couldn't understand some of the things that happened around me, and I didn't feel that I fitted in. I also remember clear signs of anxiety in my childhood. But not knowing I had Asperger's was the worst part. My parents divorced when I was 5 or 6, and I guess that left a scar on me as well. Let's have a look at my life about 5 years ago in 2010. I was 15 years old, I had just had a mental breakdown, and I stopped going to school. This was mainly because of bullying and being completely fed up with sitting in a noisy classroom with 30 other students. So I quit. Bad decision? Maybe. Maybe not. But one thing's for sure: I couldn't take another day, let alone stay another minute. I was severely depressed and anxious all the time, suicidal, and half a year later I was diagnosed with Asperger's Syndrome, Social- and Generalised Anxiety Disorder, plus severe depression. I was basically scraping the bottom of the poo barrel (not literally though!) I was offered meds for anxiety and depression, which I gladly accepted. I tried a few different ones, and eventually settled on a combination of meds that helped me, even though they had heavy side-effects. A year passed where I stayed home, being miserable and close to a psychosis. I was terrified of leaving my mother's apartment. I was basically a hermit. Leaving my home was literally painful, not to mention just living in general. Think a constant 10 on the anxiety scale, when I was outside. Now, don't ask me how, but somehow I found one little glimpse of hope in the distance. It only took a whole year. That little speckle of hope and will to fight, led me to start at a new school in a class with only a couple of students, in order to finish my exams. They all had either Asperger's or anxiety, or both. Starting at a new place in my condition.. Well, it wasn't easy. Far from it. This was actually one of the toughest periods of my life. But soon I discovered that the teachers there, were the kindest and most understanding teachers I've ever had. Not to mention the students who were all lovely too. That helped me through a lot, knowing that no matter how much I hated being there, there were people who I cared about, and who cared about me. I only needed 1 more year before my exams, but it took me 2. But despite all the challenges, I managed to complete the exams at last, and with good grades! It's now been almost 2 years since then. So what have I been doing in this time? I've been working on bettering myself. I try to challenge myself, as often as possible, while not overdoing it and burning out. Baby steps, they say! One little victory at a time. I've come so far compared to 2 years ago, and especially 5 years ago. It took lots of time, and A LOT of hard work, but it has definitely paid off. I'm not depressed anymore. My anxiety levels are much more tolerable and I'm feeling better and better all the time, with only the occasional anxiety attack. I go out much more often than I used to now. And the meds I'm taking are working much better than what I used to take. Eventually, I may get off of them I'm also seeing a psychiatrist who specialises in CBT (Cognitive Behavioural Therapy) and she has helped me loads, I have my own mentor who I train various things with, like going various places, etc. I will also *hopefully* start studying again soon. I'm thinking this summer/autumn. So yeah, I'm in a much better (less terrifying) place now, things are finally looking good for me, I have the will to live, and I'm positive about the future (most of the time.) This might not seem so amazing to everyone else, but what I've gone through and how far I've come, really is an achievement to me. But this is only the beginning, and I have so far to go. The battle is never over. So what is the point of this story? Well, my point is really that there is always hope out there. No matter how far down you are, who you are, or where you are from. There's always hope, even if you can't immediately see it. Some people say that "time heals all wounds", and while I think that's true, I also think that you have to work for it. It does get easier with time though. And as much as I hate this saying "No pain, no gain" it's actually true to some extend, in my opinion at least. A wise man once said, that there are people out there who loves you, even if they don't know you yet. Just because you're human. Thanks for reading! ~Alex P.S. If I can do it, then YOU can do it too!
  13. I'm doing some reading about what to expect in getting a formal diagnosis as an adult and...I may have a problem. Some of what I'm reading suggests the doctor may want to question my family and anyone else who knew me as a child. To say that might be a problem is....putting it mildly. I'm 30 years old, still live with my parents and sisters, (rent around here is half of what I make in a month and I like not living paycheck to paycheck, because I've done that and it's HARD,) and anyone outside of my family who knew me as a kid has looooong since moved out of the area, and I deleted my BookFace because I Hate People, (and politics...) so any contacts THERE are also gone, and I don't think any of those folks would remember to keep their yaps shut. What do I say for, "I'm sorry, but I'd rather die a slow and painful death than my parents even suspect that I'm in your office, so no you're not asking them." Same goes for siblings and anyone else. I'm even afraid my primary doc would accidentally let something slip... (My pediatricians have long since retired, and the only other doc who's seen me from childhood is my ophthalmologist, but 1) he's my dad's friend as much as he is his eye doctor, and 2) he's never been in a good position to see AS symptoms Just Because That's How It Happened.) What if they ask about employers? As I said in my intro thread, I'll probably wind up disclosing to my supervisor, (for reasons far beyond what I went into in that thread, but some of the details of other reasons why start to get into things specific enough that it could reveal my employer, and That Would Be Bad.) I have friends who've known me 10+ years, and, sure, they know my family's a mess and why I'd rather be flayed alive than my parents or sisters be able to call me "autistic." Would that suffice for a decent human being? Anyone else been in this situation? How did you handle it? For legal purposes, I'll reiterate that I live in the US.
  14. blacktiger911

    How Did I Get AS?

    so i don't know how it got as and if certain events may have done it to me. so my mom did meth when i was inside her. i was beaten unconscious and hospitalized at the age of 18 months with a brain injury. i want to know if these had anything to do with my as or anything else or is as just genetic?
  15. Hello everyone! Tomorrow, I will be seeing my doctor to ask if he can refer me to specialist. It is about getting a diagnosis for Asperger's Syndrome. I live in South East Britain. So, I would love to hear from others in England who had gone through the process of getting yourself formally diagnosed. How was your path? Was your GP knowledgeable about Asperger's? Was he or she well-acquainted with all the steps that a patient might have to go through? How long did it take you to get the diagnosis? Is it a longwinded journey? I'm really interested in those of us who used the NHS in your area for this issue. I am really not willing to pay to have this diagnosis. I would love to hear about your recent experiences.
  16. Tomorrow I'm heading to the doctor to get diagnosed with whatever I have
  17. L Lawliet


    So I was officially diagnosed yesterday My psychologist said I ticked pretty much all of the boxes for Aspergers Syndrome and that they already knew I had it from my initial assessment. She is sending the final report to me and my GP at the end of this week (I've already seen the draft copy though) and she is also writing me a mini report for my boss outlining that I struggle on the phones and stuff. They've referred me to an occupational therapist who is looking forward to meeting me, as she specialises in the sensory side of AS and apparently I am very sensory. I think I'm feeling every emotion at the moment. But mainly I'm happy and relieved that I finally have my diagnosis
  18. ‚ÄčI know other people have made threads about the diagnostic process, so maybe I shouldn't be making a new one (sorry if so!), but I am going in for my initial appointment on 04/03/14 and really have no clue what to expect. I'm in the US (Virginia, to be exact), so I know most of you won't be able to help since you're in the UK. But maybe someone has some insight? I'm seeing a psychologist. I wasn't sure who to see for a diagnosis, but this doctor had "asperger's" under his specialties (along with probably 20 other subjects! :S) so hopefully he knows what he's doing... I think the first appointment is going to be a general "get to know you" sort of session. Asking me why I want to be tested and why I should be tested. But I'm just guessing really, I don't know WHAT it will be like... I'm really nervous/curious about where it would go from there. I found some articles about the testing process but I don't know if psychologists use these tests or only neurologists do... I'm also just getting nervous because I've been looking into more severe autism as well (like watching this) and it's so radically different, it makes me wonder if I even have aspergers at all... When I look into aspergers I feel certain it fits me, but autism is SO debilitating, and I'm not any where near as debilitated as that... It makes me feel like the doctor will think I'm an idiot or a liar or something... What will I do if he tells me I'm just so far off the mark and I am nowhere close to having aspergers? I'll feel so lost once again... This is the only thing that has really clicked for me (enough to make me finally see a doctor -- I've never been to one for my mental issues before! So that's saying something.) Anyway, does anyone have some words of advice for the diagnostic process, some stories they can share, or some insight into what to expect? Thanks! (I'm 25 and female by the way).
  19. I'm gradually nearing the first step towards a diagnosis which will be to go to a GP but the route from there scares me a lot. I'm especially anxious as I do not know what will happen at all or what the GP will ask me and then what the psychiatrist will ask me. I am absolutely unprepared and I hate this feeling. Could any diagnosed Aspies tell me what to expect from my GP and then psychiatrist. Also, what would the normal diagnosis process be like for a teenager. Thank you. :S
  20. Apologies here but this is a copy of a post I have put in another Aspie forum, but I thought people on Asperclick might be interested to read this. Just heard the following programme on BBC Radio 4 on Monday 3rd March 2014 from 11:00 to 11:30 http://www.bbc.co.uk/programmes/b03wp5j4 It's not on iplayer yet, but it was somewhat interesting. The following is just my interpretation of the programme and I have probably got this all wrong, so bear with me on this one... I think they were trying to argue that a lot of men don't really have Aspergers but are "just being men". It goes on to say that, in modern times, women are more demanding of men in their relationships, men do not live up to this, and that is why so many wives are pushing for a diagnosis for their husbands. In the good old days, men just went to their sheds and carried on innocently with their hobbies, but now they are forced into the limelight and made to socialise at parties/participate in childcare and so forth. It did not discuss women with Aspergers at all. Below is a synopsis from the BBC website... Quote:Asperger's Syndrome or Not? Series 2 Episode 2 of 3 Duration: 28 minutes First broadcast: Monday 03 March 2014 Why do so many women think their men have Asperger's syndrome? Is there a hidden mental health epidemic, or have the rules of relationships changed? Asperger's only entered the textbooks in 1994, but since then there's been an explosion in the number of people diagnosed. Mostly it's male children, but increasingly, women seem to be diagnosing their adult partners as being "on the spectrum". But the diagnostic criteria for Asperger's are vague and, some argue, arbitrary. One criterion is that the person is bad at social interaction. The other is that they have to have restricted interests. In the case of the mature male, it's hard to work out what distinguishes Asperger's - which is in the textbooks as a "mental disorder" - from the behaviour of a "neurotypical" man who tends towards shyness, introversion, or selfishness. Today's men are required to be more emotional in relationships than their fathers and grandfathers. Does the fact that some struggle in this respect mean that Asperger's is being uncovered where previously it would have been hidden? Jolyon Jenkins talks to women frustrated at their husbands' lack of empathy, sociability, and romantic impulses, and to clinicians who specialise in the diagnosis and counselling of people with Asperger's. He also talks to the man largely responsible for getting Asperger's into the psychiatric textbooks, who now regrets his role and believes that it had led to the "pathologising of normal behaviour". Aspergers, men and women Maxine Aston, the psychologist featured in the programme, can be found here: http://www.maxineaston.co.uk/ Professor Tony Attwood is here: http://www.tonyattwood.com.au/ The "mind in the eyes" test: http://well.blogs.nytimes.com/2013/10/0 ... blogs&_r=0 As you can see, this is quite controversial; I don't really agree with the somewhat snide implications that are hinted at here. To my mind, Aspergers is far more than a "tendency towards shyness, introversion, or selfishness". It's an exhausting lifelong battle with my brain in trying to integrate in a totally alien hostile world. Perhaps I am being biased. What do you think? Best wishes Jannie the Chicken

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