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Do You Ever Worry You Don't Have Aspergers?

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InsomniaDreams

Well I know that I've grown out of a diagnosis. If I was tested as a kid or a teen probably then yes. A great deal of psychiatry is pure opinion and its important to remember that. Also diagnostic standards change over time. So the goalposts are moved. I do think that in the age of the Internet it's become easier to self diagnose anything and that can be dangerous. However with AS its kind of something that you just know, it's a bit like sexuality really. No one who meets me thinks that I have it or would know if I didn't tell them. My experiences of telling people are not good tbh. I actually never head of AS until 2 years ago.

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Xmas
I guess this is more aimed at those who don't have a diagnosis. And really, my first question would be, how did you come to the conclusion that you have Aspergers? Then from that, are you getting a formal diagnosis? And if so, what will happen if they say you don't have Aspergers? 

But for those of you with a diagnosis, do you ever worry that it is a mis diagnosis? Either because you just feel it doesn't fit, or because you sometimes look at how other people are and worry that you're coping better so maybe you don't have it?

I sometimes think that I've 'grown out' of Aspergers, until I realise that I've just learnt to cope better as I've gotten older. Though, mostly that's due to isolating myself in my home with Chris, or just on my own when he's at work. And as for going out, I rarely get out of my car unless it's somewhere I know won't be busy, or I'm familiar with it.

I believe I have Asperger's Syndrome but I haven't had a formal diagnosis. How did I come to the conclusion that I have Asperger's? It is only about the last two years that I have even heard of Asperger's, but all my life I was aware that I was different from my peers. In my younger years I thought that maybe I was suffering from some kind of depression but it did not feel right as I can't say I was really unhappy, I was just confused and melancholic and was acutely aware of my difference and tried to fit in.

 

I seem to have many of the traits associated with Asperger's - socially awkward - I hate socialising, I hate being amongst crowds of people, I hate having to make conversation and I hate having to answer people when they talk to me. Sometimes I have that choice taken from me - not sure if it is selective mutism or sensory overload - but all I know is some people talk to me and I am unable to answer them. It is not through choice, it just happens. It is the reason I am off work at the moment, I cannot cope.

 

I have many, many more traits of Asperger's, too many for me to list here but I sometimes wonder if it is possible to have these traits and yet not have ASD? My GP has referred me to see a consultant psychiatrist for possible Asperger's and I am waiting for a date.

 

What will happen if they say I haven't got Asperger's? I don't really know. I will still be the same person who is totally unlike any NT person and I will still be working in my job. I just have to wait and see.

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Bruce

Best wishes with that, Xmas! You'll probably get diagnosed as you expect to be, too.  :P

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Nesf
I believe I have Asperger's Syndrome but I haven't had a formal diagnosis. How did I come to the conclusion that I have Asperger's? It is only about the last two years that I have even heard of Asperger's, but all my life I was aware that I was different from my peers. In my younger years I thought that maybe I was suffering from some kind of depression but it did not feel right as I can't say I was really unhappy, I was just confused and melancholic and was acutely aware of my difference and tried to fit in.

 

I seem to have many of the traits associated with Asperger's - socially awkward - I hate socialising, I hate being amongst crowds of people, I hate having to make conversation and I hate having to answer people when they talk to me. Sometimes I have that choice taken from me - not sure if it is selective mutism or sensory overload - but all I know is some people talk to me and I am unable to answer them. It is not through choice, it just happens. It is the reason I am off work at the moment, I cannot cope.

 

I have many, many more traits of Asperger's, too many for me to list here but I sometimes wonder if it is possible to have these traits and yet not have ASD? My GP has referred me to see a consultant psychiatrist for possible Asperger's and I am waiting for a date.

 

What will happen if they say I haven't got Asperger's? I don't really know. I will still be the same person who is totally unlike any NT person and I will still be working in my job. I just have to wait and see.

From your description it does sound like you have AS, but as there are other disorders with similar symptoms it's a good idea to get a professional opinion or diagnosis. If I were you I wouldn't tell too many people about it and be careful who you tell as it can cause misunderstandings and problems, as Oakers can testify.

 

On some days I really feel I have it, and on other days I feel I'm "normal" and wonder if it's all in my imagination. In 1991 I was diagnosed with "Social Phobia" and I sometimes wonder if that's what I have and not ASD, as AS wasn't mentioned to me at the time, perhaps I managed to mask my AS traits a bit better - but there again I have other symptoms of ASD like special interests and sensory problems... I think that in the end one has to have faith in the opinion of the professionals who diagnose you, if you don't there will always be that element of doubt.

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Xmas
From your description it does sound like you have AS, but as there are other disorders with similar symptoms it's a good idea to get a professional opinion or diagnosis. If I were you I wouldn't tell too many people about it and be careful who you tell as it can cause misunderstandings and problems, as Oakers can testify.

 

On some days I really feel I have it, and on other days I feel I'm "normal" and wonder if it's all in my imagination. In 1991 I was diagnosed with "Social Phobia" and I sometimes wonder if that's what I have and not ASD, as AS wasn't mentioned to me at the time, perhaps I managed to mask my AS traits a bit better - but there again I have other symptoms of ASD like special interests and sensory problems... I think that in the end one has to have faith in the opinion of the professionals who diagnose you, if you don't there will always be that element of doubt.

Thank-you for the advice I will keep what you said in mind. Like you I also have other ASD traits such as special interests and sensory problems. I hate noise in particular, but also I am sensitive to light and certain smells. Although I do travel in buses and sit in waiting rooms, I hate both not just for social reasons but also because of the various smells that come from people. I am also a bit apprehensive when eating out because again not only the social issue but also noise, smells and I can't stand the texture of certain foods depending on how they are cooked. Many a time I have stood in the door of a restaurant and turned around and walked straight back out. I don't like being touched either.

 

It will be difficult going back to work because I do have to decide how much I can say. If I say nothing, my colleagues will be wondering why I took so much time off for stress. And of course I can't tell my employer that my stress/anxiety is a result of ASD until I get a diagnosis. 

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Bruce

Hopefully, that'll all be sorted out soon, then! Did you say you had an appointment with somebody for a diagnosis?

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Toran

Ive searched the internet and come up with this information. If you are not working now but have an official diagnosis of aspergers you must tell your potential employer before you take the job. To quote the statement I read if you disclose it after and are working the employer would be within their rights to show you the door. It doesnt work the same if your in employment at the time and have a diagnosis. I never knew that fact Im just making it known for those that didnt know also.

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Toran
Thank-you for the advice I will keep what you said in mind. Like you I also have other ASD traits such as special interests and sensory problems. I hate noise in particular, but also I am sensitive to light and certain smells. Although I do travel in buses and sit in waiting rooms, I hate both not just for social reasons but also because of the various smells that come from people. I am also a bit apprehensive when eating out because again not only the social issue but also noise, smells and I can't stand the texture of certain foods depending on how they are cooked. Many a time I have stood in the door of a restaurant and turned around and walked straight back out. I don't like being touched either.

 

It will be difficult going back to work because I do have to decide how much I can say. If I say nothing, my colleagues will be wondering why I took so much time off for stress. And of course I can't tell my employer that my stress/anxiety is a result of ASD until I get a diagnosis. 

I had the same dilemma but in my opinion its best to be open about it because if works effected you could be disciplined or sanctioned for your sick record but they may do that anyway. They could think your being lazy or off hand with other workers where as its to do with the syndrome over all I think its the best thing to do.

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Xmas
Hopefully, that'll all be sorted out soon, then! Did you say you had an appointment with somebody for a diagnosis?

Yes, I am waiting for a date, but that will probably take some time so I am going to return to work in the meantime and see how things go

 

I had the same dilemma but in my opinion its best to be open about it because if works effected you could be disciplined or sanctioned for your sick record but they may do that anyway. They could think your being lazy or off hand with other workers where as its to do with the syndrome over all I think its the best thing to do.

 

Yes I agree, because before I went on the sick and I was having problems, those very things you mention were on my mind. I was thinking that people must be thinking I'm lazy and also wondering why I was not responding when certain people were talking to me. I was powerless to do anything different and also very confused myself.

 

But I also agree with Nesf and I have to be careful who I tell until I know whether it is ASD or Social Phobia etc.

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Bruce

Hope the waiting list to get diagnosed where you are isn't as bad as it is now, down here! I think it's about a year between getting referred & getting to see somebody for a diagnosis here....

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