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Do We Even Have Asperger's Anymore?

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mary

Its been said before here oakers but if you ever got another job now you have to tell them you have been diagnosed by law otherwise when they find out they can sack you and you have no rights you lied to them.

But will an employer take you on knowing your on the Autistic spectrum? There is always an excuse for them you just were not what they were looking for.

I havent been diagnosed yet and could say no I wont be because of the problems.

I guess im saying its up to the likes of you and me to make people listen that being autistic doesnt mean we cant work or cant be valued in the workplace. Im putting nobody down on the site but there are people here that wouldnt have a chance in a workplace environment or dealing petty officials but you can and me and certain others here too.

There are those all over the country who are in fear of the work place and benefits system that they wont get any benefits and be told they are fit for work.

Im going ahead with my diagnosis and if they say I have it like I think I have then its time to step up and be heard.

Being the quiet kick my ass spiritulist hasnt work because they just laugh at you. Im still a spiritulist but mess with me and ive got teeth is my attitude now.Ive gone over this many times and people have said being spiritual doesnt mean you dont have rights and cant defend yourself dont look for trouble but if it comes deal with it in the principles of humanity and if there are those that dont like treating people with decency and respect go for them.

Im still in transition so maybe im not word perfect but you get the ideal.

 

Like I said, things aren't as cut and dried as you make them out to be.

 

I've said this before, and I'll say it again, as far as I am aware you are under no actual legal obligation to divulge your diagnosis to anyone.  From what I understand it is your decision to divulge your diagnosis to an employer, and they don't have any right to sack you if they 'find out' you have AS / ASD.  Would you tell them you had a physical illness?  Only if it affected your ability to do the job.  I do believe that you don't stand the chance of getting any help if you haven't divulged your diagnosis though and something goes wrong at work - ie the employer can say that you didn't divulge your diagnosis and they weren't, therefore, able to put things into place to manage whatever may have caused the subsequent issue.

 

If you've not experienced what someone else has, how can you judge them for saying something?  Ie me saying sometimes I wish I'd not got the diagnosis at all!?  I was in a pretty sucky situation... I was told I may have it, and what did I think!?  Then went for the diagnosis and was told I had it.  The initial person advised me it might 'help' to tell work that I had it... I believed them.  (there were certain issues with a couple of members of staff but I was not the only one having such issues with them).  Probably, overwhelmed by being told I had AS and never having thought about it (not that I was distressed by it) I agreed to divulge.  I didn't have to... but given the way in which the diagnosis came about, I didn't really have much choice as I am sure it'd have been divulged for me, had I decided not to.  I have also, since, been told by the initial person not to marginalise myself by 'blaming' my AS for anything.  How convenient!

 

I have forever fought for the rights of other people, even up to just before coming off work from all of this... and now, how do I feel!?  I don't think I want to stick up for everyone anymore, not when it's to my detriment.  I have enough shit to deal with of my own on a daily basis.

Edited by oakers

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Toran

It is only a couple of people who have made things especially difficult.  If I was to behave in the manner in which you suggest I think I'd find myself in the dole queue.  It's not 'acceptable' for a member of staff to openly stick up for themselves, whether they are being bullied or not.  There are channels which you have to go through, which I have been doing... but it's not as simple and cut and dry as you like to make out.

 

I am sorry, at times, that I went ahead with the diagnosis as I now feel that it was an 'easy' way out for certain members of staff to explain why there are certain issues at work.  I have not done anything that is in any way remotely seen as this being justified treatment.

No nothing is ever cut and dry I know that but have you ever felt like this. When you say you cant say that or you will be on the dole que your right of course. But there is a system in work as you said to go through and im good at it so now im using it.

When you are being treated that way do you feel dead inside? The treatment isnt relevant its all up to the individual there. I mean when you get up in the morning and your walking round but inside there is no life like your soul is dieing a bit day by day until there is nothing left have you ever felt that? Its worse than being dead because your still here but you have no spirit left so what is keeping you here why bother. Thats how I feel being the wipping boy letting life drain ever ounce of self worth out of you until you are nothing.

Thats what listening to people taking pills did for me. You have to do the right thing what the system says what work says well no you dont have to and im not going to anymore.

Sheldon cooper in the big bang put it just right I cant remember the exact words except the last ones in capitals. You have to eat to give you vitiems go to the toilet and breath air to live.EVERYTHING ELSE IS OPTIONAL tv I know but true none the less.

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Toran

Like I said, things aren't as cut and dried as you make them out to be.

 

I've said this before, and I'll say it again, as far as I am aware you are under no actual legal obligation to divulge your diagnosis to anyone.  From what I understand it is your decision to divulge your diagnosis to an employer, and they don't have any right to sack you if they 'find out' you have AS / ASD.  Would you tell them you had a physical illness?  Only if it affected your ability to do the job.  I do believe that you don't stand the chance of getting any help if you haven't divulged your diagnosis though and something goes wrong at work - ie the employer can say that you didn't divulge your diagnosis and they weren't, therefore, able to put things into place to manage whatever may have caused the subsequent issue.

 

If you've not experienced what someone else has, how can you judge them for saying something?  Ie me saying sometimes I wish I'd not got the diagnosis at all!?  I was in a pretty sucky situation... I was told I may have it, and what did I think!?  Then went for the diagnosis and was told I had it.  The initial person advised me it might 'help' to tell work that I had it... I believed them.  (there were certain issues with a couple of members of staff but I was not the only one having such issues with them).  Probably, overwhelmed by being told I had AS and never having thought about it (not that I was distressed by it) I agreed to divulge.  I didn't have to... but given the way in which the diagnosis came about, I didn't really have much choice as I am sure it'd have been divulged for me, had I decided not to.  I have also, since, been told by the initial person not to marginalise myself by 'blaming' my AS for anything.  How convenient!

 

I have forever fought for the rights of other people, even up to just before coming off work from all of this... and now, how do I feel!?  I don't think I want to stick up for everyone anymore, not when it's to my detriment.  I have enough shit to deal with of my own on a daily basis.

One thing you have always had is a great spirit and because of what happened you dont feel that way anymore. Thats heart breaking to hear your spirit broken but its your choice oakers.

But its only my opinion get back in the saddle and fight like you have its not malicious you just defended others. Dont die piece by piece inside because of them what they did. I know its your choice and right to do that I just hope you change your mind. I played my part didnt I being a swine to you because I was mixed up it all takes its toll doesnt it.

You must do whats right for you but I swear I will never get that low again because I was hiding and frightened about being ill im an aspie and proud of it and if anyone wants to pick on me because of it the words of Jeremy Kyle grow a pair stand up and be counted.

God two t v programs im quoting what the hells happening to me lol

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MANOFSTEEL2013

I have ASD but I think I should be diagnosed as having AS

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Xmas

Hi Xmas... I'm sorry to hear you are having difficulties at work, or with work.  Is it the actual work that is the issue causing you to need to take the time off?  Have you had a good discussion with your supervisor?  it sounds like they are being quite accommodating.

 

I'd caution you to be careful if you do get an official diagnosis, if you've not mentioned the prospect of this to your supervisor already, as some people do not have the reaction you may think they will.  Unfortunately for me it went 'tits up' so to speak when I divulged my diagnosis and I'm now stuck dealing with the aftermath.  That's not to say that divulging wouldn't be right for everyone else, I'm just saying be careful!

Hi Oakers, sorry I did not answer this sooner, I guess I have been a bit lax lately and have not read all the posts, hence my not replying to this one sooner.

 

It's a tricky one because it is partly the job that is the problem, but it is also partly me. I work in an office with about seven or eight people, even more when fully staffed. There are always people coming and going and the office is very busy and there is a lot of noise in there. Unfortunately, I am not very sociable and I constantly feel uncomfortable being with so many people in such a confined space, everyone talking at the same time and phones constantly ringing. It would be impossible to describe in one post exactly what it is like, but suffice to say the combination of enforced socialising and the ever present background noise has taken its toll on me.

 

I suspected that I have Asperger's for some time, but having seen the psychiatrist today, she has decided to diagnose me with Social Anxiety Disorder instead. She suspects that I am on the spectrum, but not significantly. Yes up until now my bosses have been very supportive, it will be interesting to see how things pan out over the next few weeks.

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Sofi

I have ASD but I think I should be diagnosed as having AS

 

I don't think one can get diagnosed with Asperger's Syndrome anymore and it will only be ASD anyway - obviously to the huge varying degrees in different people. 

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Shibumi

I might be wrong (and often am) but the doesn't the DSM only cover the USA? There is still the World Health Organization ICD-10 for the rest of us?

If you look up asperger's on wikipedia you'll see what I mean.

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Nesf

Hi Oakers, sorry I did not answer this sooner, I guess I have been a bit lax lately and have not read all the posts, hence my not replying to this one sooner.

 

It's a tricky one because it is partly the job that is the problem, but it is also partly me. I work in an office with about seven or eight people, even more when fully staffed. There are always people coming and going and the office is very busy and there is a lot of noise in there. Unfortunately, I am not very sociable and I constantly feel uncomfortable being with so many people in such a confined space, everyone talking at the same time and phones constantly ringing. It would be impossible to describe in one post exactly what it is like, but suffice to say the combination of enforced socialising and the ever present background noise has taken its toll on me.

 

I suspected that I have Asperger's for some time, but having seen the psychiatrist today, she has decided to diagnose me with Social Anxiety Disorder instead. She suspects that I am on the spectrum, but not significantly. Yes up until now my bosses have been very supportive, it will be interesting to see how things pan out over the next few weeks.

I suppose you could be described as what is often known as a "mild Aspie" as you seem to have other symptoms apart from the more obvious social communication ones, such as sensory ones. It could be that the Psychiatrist is very cautious about giving such a label and thinks you may benefit more from the Social Anxiety Disorder. I guess that now the new DSM-5 Social Communication Disorder, which is considered by the NAS to also be part of the spectrum, could have been an option. But anyway, the most important thing is now to see if you can get help and get things sorted out from there. I'm pleased they have been so understanding at work.

 

I might be wrong (and often am) but the doesn't the DSM only cover the USA? There is still the World Health Organization ICD-10 for the rest of us?

If you look up asperger's on wikipedia you'll see what I mean.

Yes, the DSM is used in the UK, and I was diagnosed according to it in the UK, but from what I understand the ICD is used more often.

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Andy

Aspergers might have been a valid diagnostic difference when we were a closer more social society but now where most live alone in this synthetic communication age could it be aspergers is the reality of most people where those still functioning undiagnosed haven't got to the melt down point yet where diagnosis often comes ?

 

Because at one time that melt down was taken as schizophrenia and many an aspie ended up on dangerous medication and often denied freedom.

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Sofi

Aspergers might have been a valid diagnostic difference when we were a closer more social society but now where most live alone in this synthetic communication age could it be aspergers is the reality of most people where those still functioning undiagnosed haven't got to the melt down point yet where diagnosis often comes ?

 

Because at one time that melt down was taken as schizophrenia and many an aspie ended up on dangerous medication and often denied freedom.

You make a good point. 

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